American Living Organ Donor Network
The American Living Organ Donor Fund changes its name to reflect its expanding mission. The new American Living Organ Donor Network is the American Living Organ Donor Fund you all know and love and more. The new name reflects more accurately what we do. Of course, we still fund living organ donor’s expenses, funds permitting, but now, we have doubled our efforts to educate donors and the public.
Our First Local Living Donor Network
The American Living Organ Donor Network has started its first local living donor network; it services the Washington D.C. Metro area. We are pleased to announce that Anthony Henderson has agreed to be the network director. Anthony and Sigrid have signed up to be part of Harvey Mysel’s Speakers’ Bureau for living organ donation education, the Living Kidney Donor Network Fraternal Education Initiative. The ALODN program, for now, will concentrate on the DC area and cover all forms of living organ donation, not just kidney donation. The DC Network has adopted the motto “Educate, Connect, Support.” See the DC Network website at www.DCLivingOrganDonors.org.
Anthony Henderson
Living Organ Donor News
*Join the ALODN in its support of Stop Organ Trafficking Now!’s living organ donor rights movement. The issue is not whether we should tempt living organ donors to donate. The issue is making sure they have the information and support they need to make wise and safe donations. See the SOTN “What We Want” section. Please consider signing our petition to get Congress to consider much-needed benefits for living organ donors.
*Dr. Lainie Friedman Ross at the University of Chicago is doing research to try to isolate potential indicators for kidney failure among living kidney donors that could have been detected before donation. She is still recruiting kidney donors who have developed kidney failure. Please contact Dr. Ross at Lross@uchicago.edu or call (773) 702-6323 if you are interested in participating in the study.
*A new non-profit has been created to help donors and recipients find matches. If you are a donor and your recipient isn’t a good match, the two of you can enter your information on KidneyMatch.com to try to find another pair with whom to do a swap. The service is in its infancy but is working to develop a system that works across current program barriers to find matches.
*The Donor Toolbox for standards of care was first developed for deceased organ donation. Now the American Transplant Society is working on a standards of care tool box for living organ donors.
*HRSA has funded a new website: Infomate/Infórmate. Inform yourself about living kidney donation and transplantation in both English and Spanish.
Please contact Sigrid Fry-Revere if you have news items you would like included in our next newsletter. Newsletter editors: Sydney Zheng and Sohil Shah
The Kidney Sellers: A Journey of Discovery in Iran
All royalties go to support the Center for Ethical Solutions’ Solving the Organ Shortage Project.
The New York Times columnist Tina Rosenberg wrote the author, “I read your book from cover to cover last night in one sitting.” In her column she called The Kidney Sellers “fascinating.”
“Sigrid’s journey…reads like a novel blended with a captivating news article that you quite literally cannot put down.” — Rogue Reviews.
“Eloquently, humorously written, it is one of my best reads in years-fascinating to anyone who loves a good travel adventure story, but essential for anyone interested in overcoming the organ transplant problem that costs thousands of lives each year.” — Robert Veatch, Ph.D.
“[A]s I finish and my head spins, trying to take in all the data I have been presented with, the best thing I can do and say is the following: The Kidney Sellers: A Journey of Discovery in Iran by Sigrid Fry-Revere is a must read for anyone with a conscience.” — Clayton Bye (Author of The Speed of Dark).
See TEDMED on the same subject –here–
